(Springfield, MO)—Miss Emily Crabtree, a vivacious nine-year-old from Waynesville has been named the Goodwill Ambassador for the State of Missouri by the Muscular Dystrophy Association (MDA), Judy Gann, President of MDA’s Greater Ozarks Area Chapter announced Friday.
“As the Missouri State Goodwill Ambassador,” Ms. Gann said, “Emily will make public appearances throughout Missouri to encourage volunteers in the Association’s year-round educational and fundraising campaigns and will also take part in a number of special events held throughout the state.”
Emily is the daughter of Steve and Tara Crabtree. Her condition was diagnosed as Congenital Nemoline Myopathy at the age of three. Congenital Nemoline Myopathy is one of the muscle diseases covered by MDA’s research and care programs. “Emily is a very upbeat child and makes the best out of situations. She doesn’t let her muscle disease slow her down,” reports her mother, Tara.
Emily is outgoing, considerate, polite and makes friends easily. She is not afraid to try new things and maintains a positive attitude in spite of her physical limitations. Emily enjoys singing, fishing, swimming, drawing, dancing, horseback riding, baton twirling, cheerleading, gymnastics, and playing baseball. Emily loves nature and catching critters with her little brother and loves animals of all kinds.
Emily’s diagnosis causes her to have a delay in gross and fine motor skills. She receives physical and occupational therapy. Because her muscles are weak, some physical activities are more difficult and cause her to tire quickly. She sometimes has difficulty keeping up with her peers. Emily loves to participate in group activities and always perseveres even when the activities are difficult.
“I am so honored to be the 2013 MDA Goodwill Ambassador for Missouri. I can’t wait to tell people about all the wonderful things MDA does for kids and adults just like me!” Emily said.
MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. In Missouri, MDA clinics are located at Washington University School of Medicine in St. Louis, Mercy Hospital in Springfield and Joplin, and University of Missouri in Columbia. Included among the 275 MDA research grants currently funded in the U.S. and abroad are grants to University of Missouri and Washington University in Missouri.